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Cancer in children is very different from cancer in adults, involving different cancer types and occurring much less frequently. In some populations, the number of cases of childhood cancer is growing slightly each year, but the cause of this increase is not yet known. Fortunately, survival has greatly improved in many countries. Today, in high-income countries, 80% of childhood cancer patients have a good chance of survival, compared with only 20% 50 years ago. However, huge inequalities persist. In low- and middle-income countries, many childhood cancer patients remain undiagnosed or untreated.
To better understand and address these inequalities, the International Agency for Research on Cancer (IARC) supports the World Health Organization (WHO) Global Initiative for Childhood Cancer, which aims to reach at least a 60% survival rate for all childhood cancer patients globally by 2030.
Dr Eva Steliarova-Foucher leads the childhood cancer team in the Section of Cancer Surveillance at IARC.
Applications are now open for the 2nd Annual International Agency for Research on Cancer (IARC) – Korean National Cancer Center Joint Summer School on CANCER REGISTRATION: Principles and Methods.
TARGET PARTICIPANTS. The course is intended for health professionals working in cancer registration and targets up to 25 participants from South, South-East and East Asia. Priority is given to applicants from low- and middle-income countries who are involved in the process of establishing or strengthening a population-based cancer registry. All participants must be fluent in English, the working language of the course. Please see attached announcement for further details. Deadline for applications is 16 March 2020.
There is no registration fee for the course. The Summer School is part of the framework of the Global Initiative for Cancer Registry Development (GICR)’s efforts offer basic courses in each of the six GICR Hub regions and
to extend learning opportunities. The Korean National Cancer Center and its Graduate School of Cancer Science and Policy have generously provided the financial and technical support for this to be possible.
TO APPLY: Interested professionals are invited to submit their application through the online form: IARC Korean NCC Cancer Registration Summer Course Application (click here) or, via the IARC Education and Training Website.
Our partners and course lead faculty, Prof Paul Dickman (Karolinska Institutet) and Prof Paul Lambert (University of Leicester) sends an invitation to the intensive 1-week course, “Principles, Methods and Application of Statistical Methods in Population-Based Cancer Survival Analysis to be held in Castel Brando, Veneto, Italy. The course covers central concepts, such as how to estimate and model relative/net survival, as well as recent methodological developments including cure models, flexible parametric models, proportion of expected life lost, and estimating crude probabilities of death.
Who should attend. Epidemiologists, statisticians, physicians and oncologists, public health specialists and others with an interest in methods for studying cancer patient survival. The course is focussed on analysis of data collected by population-based cancer registries, but we welcome participants with interests in other areas. The methods taught (e.g., competing risks, modelling (especially flexible parametric modelling), regression standardisation etc.) can be applied to any area.
The course is organised by the Summer School on Modern Methods in Biostatistics and Epidemiology.
Scholarships. A limited number of scholarships (tuition only) are available for accredited university students. Scholarships cover the cost of tuition, for at most one week. Students enrolled in a degree program in a non-European country may apply. Students from EU or North America are not eligible for scholarships. Deadline for application is 8th of March, 2020.
The International Agency for Research on Cancer (IARC), Lyon, France is hosting the Registration of Cancer in Children: Opportunities and Challenges on Tuesday 22 October 2019. The theme of the workshop is aligned with the Global Initiative for Childhood Cancer (GICC), launched by the World Health Organization (WHO) in September 2018.
The proceedings of the meeting will contribute to the development and success of the GICC.
The workshop is being organized by IARC, in collaboration with St. Jude Children’s Research Hospital as WHO Collaborating Centre for Childhood Cancer.
Participation in the workshop is free of charge, but registration is required, as places are limited. The registration closes on 31 August 2019.
For further details and to register for the workshop, follow the link to the International Incidence of Childhood Cancer (IICC) – IARC webpage.
IARC – GICR held its third Master Class: Analysis of Population-based Cancer Registry Data on July 1-5 as part of IARC’s 2019 Summer School. The course invited staff from cancer registries and other institutions in the six GICR Hub regions that utilize cancer registry data. A final 18 participants completed the course and confirmed their involvement in GICRNet – IARC GICR Regional Trainers. They will go on to share knowledge with peers through active involvement in courses, consultancies and assistance in their respective regions.
The module is a comprehensive course for trainers focused on developing technical capacity to organize courses, transfer knowledge and lead on local capacity building activities to use, analyse PBCR data disseminate the results produced from the analysis. The course covered the following topics: assessing trends over time, including studying the role of age as well as changes in trends at a specific calendar period or cohort, cancer survival analysis: life table methods, net survival and adjustment for age, selection and use of analytical or statistical tools for descriptive epidemiological analysis using PBCR data, interpretation and dissemination of descriptive analytical results using PBCR data and practical advice to assess PBCR data.
Each IARC GICR Regional trainer have been equipped with standardized educational material and resources so that they can then serve as faculty, provide assistance to local registries and contribute towards new tools to support local capacity-building in cancer registration.
IARC GICR and the Korean National Cancer Center and its Graduate School of Cancer Science & Policy (NCC-GSCP) is holding the inaugural IARC GICR – Korean NCC Summer Training Course on Cancer Registration on 08- 12 July 2019.
The course will focus on the fundamentals of planning and developing population-based cancer registries. Population-based cancer registration is a basic element of cancer control, making possible the rational use of resources as well as the identification of areas in need of research. In many parts of the world, cancer registries provide the only source of information on the size, nature and evolution of the local cancer problem.
The course is intended for health professionals working in cancer registration. The course targets up to 30 participants from South, South-East and East Asia. Priority is given to applicants from low- and middle-income countries who are involved in the process of establishing or strengthening a population-based cancer registry. All participants must be fluent in English, the working language of the course.
2019 Vancouver: the Combined Scientific Conference of NAACCR and IACR
June 9-13, 2019
The combined conference of North American Association of Central Cancer Registries (NAACCR) and IACR (International Association of Cancer Registries) for 2019 is a unique opportunity for professionals to network with colleagues conducting similar work globally. The conference is taking place June 9 – 13, 2019, in Vancouver, British Columbia, Canada.
The conference programme is available here: https://www.naaccr.org/naaccr-iacr2019/#program
Epidemiologic Studies Using Cancer Surveillance Data
- Descriptive Epidemiology
- Cohort Studies
- Survival Studies
- Cancer in special populations
- Cancer in populations around the world
- Cancers with changing or unusual patterns
- Visioning the future of cancer surveillance
- Tissue repositories, biomarkers, prognostic factors
- Technologic and scientific advances and innovations
- New and emerging methods of data collection
- Data collection in rural and remote areas
Tools for Cancer Registries
- Statistical tools and methods
- Estimating prevalence
- Data visualization tools
- Trends, projections, and estimating cancer burden
- Innovative analytical methods
- Staging system
- Surveillance issues specific to children
Challenges & Solutions in Data Management
- Using ancillary systems for core data management
- Maintaining privacy & confidentiality
- Variables for core cancer dataset
- Transitioning to XML
Advanced Data Collection
- Updates on international staging systems
- Collection of recurrence and progression data
- Collection of Treatment data
Data Collection and Operations
- Data quality, control, & standards
- Innovative data collection and/or consolidation
- Overcoming issues with data sharing
- Targeting populations for intervention
- Approaches for estimating cancer burden
- Using registry data in a clinical setting
- Obesity, HPV, or tobacco-associated cancers
Accurate information on the extent of disease around the time of diagnosis is an important component of cancer care, in defining disease prognosis, and evaluating national and international cancer control policies. However, the collection of stage data by population-based cancer registries remains a challenge in both high-income and low and middle-income countries. We emphasise the lack of availability and comparability of staging information in many population-based cancer registries and propose Essential TNM, a simplified staging system for cancer registries when information on full Tumour, Node, Metastasis (TNM) is absent.
Read the full
The Green Section articles in TLO are not eligible for open access. Registries in LMIC are welcome to demand further information through GICR.
The User’s Guide (versions in English and Spanish) is freely available in the GICR Library and Resources pages.
The IACR 40th Annual Scientific Conference key theme is “Cancer registration: from data generation to decision-making” and was jointly organised by the International Association of Cancer Registries and the Arequipa Population-Based Cancer Registry headed by Dr. Luis Medina Fernandez.
The 40th IACR Annual Scientific Conference was held at the Libertador Hotel Arequipa, Arequipa, Peru, from 13 – 15 November 2018.
Key topics included:
- Use of PBCR data in cancer control planning
- Descriptive epidemiologic studies using registry data
- Childhood cancer
- Challenges (and solutions) to cancer registration
- Using statistical models to estimate the cancer burden
- Using registry data for clinical decision making
Dr Roberto Zanetti, Piedmont, Italy, Prof Cristina Stefan, South Africa, Prof Luis Eduardo Bravo, Cali, Colombia, Dr Eduardo Cazap, Buenos Aires, Argentina, Dr Guillermo Tortolero Luna, San Juan, Puerto Rico, Dr. Shoichiro Tsugane, Tokyo, Japan, Dr Esther de Vries, Bogotá, Colombia and Dr Marion Piñeros, Lyon, France.
Cancer registration pre-conference workshops, on Quality of Cancer Registries led by Dr Marion Piñeros (IARC) and Dr Esther de Vries (Bogota, Colombia) and Cancer Registries and Cancer Control and Prevention conducted by Dr Guillermo Tortolero-Luna (University of Puerto Rico / Puerto Rico Cancer Registry) and Dr Isabelle Soerjomataram (IARC) were held on 12 November.
The conference website: www.IACR2018.org